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外科研究与新技术（中英文）

外科研究与新技术 ›› 2018, Vol. 7 ›› Issue (4): 292-295.doi: 10.3969/j.issn.2095-378X.2018.04.019

• 护理园地 • 上一篇    下一篇

艾滋病男男同性恋婚姻体验与治疗的质性研究

张林1, 鲍美娟1, 孙美艳2, 孙文秀3, 李晔2, 辛婵滢4, 卢洪洲2   

  1. 1.上海市公共卫生临床中心护理部,上海 201508;
    2.上海市公共卫生临床中心感染与免疫科,上海 201508;
    3.复旦大学护理学院,上海 200030;
    4.上海市杨浦区殷行社区卫生服务中心护理部,上海 200438
  • 收稿日期:2018-12-04 出版日期:2018-12-28 发布日期:2019-12-09
  • 通讯作者: 鲍美娟,电子信箱:baomeijuan@shphc.org.cn
  • 作者简介:张林(1977—),女,本科,副主任护师,从事艾滋病临床护理及护理管理
  • 基金资助:
    “重大新药创制”科技重大专项(2017ZX09304027); 复旦大学护理学院科研基金项目(FNF201522); 上海申康医院发展中心临床科技创新项目(SHDC12017613); 上海市卫生和计划生育委员会科研课题计划(201540121)

Qualitative study on marriage experience and treatment of homosexual male patients with AIDS

ZHANG Lin, BAO Meijuan, SUN Meiyan, SUN Wenxiu, LI Ye, XIN Chanying, LU Hongzhou   

  1. 1.Departmen of Nursing, Shanghai Public Health Clinical Center, Shanghai 201508, China;
    2.Department of Infection and Immunology, Shanghai Public Health Clinical Center,Shanghai 201508, China;
    3.School of Nursing, Fudan University, Shanghai 200030, China;
    4.Department of Nursing, Yangpu District Yinxing Community Health Service Center,Shanghai 200438, China
  • Received:2018-12-04 Online:2018-12-28 Published:2019-12-09

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摘要： 目的 了解艾滋病男男同性恋人群在婚姻家庭关系以及抗病毒治疗过程中的真实体验,为艾滋病个案管理工作提供指导。方法 对10例已婚艾滋病男男同性恋者进行半结构访谈,使用Colaizzi现象学的分析方法分析资料。结果 提炼出羞耻感及自我歧视、担心妻儿被感染和受歧视、婚姻为治疗带来压力和希望、不知道如何告知妻儿病情、对治疗预后的不确定感5个主题。结论 “同妻”婚姻家庭关系为艾滋病男男同性恋患者带来心理压力,对其治疗带来影响,该人群存在伦理困境,他们的生活方式影响疾病传播,该人群需要专业医护人员提供有针对性的干预。

关键词: 艾滋病, 男男同性恋, 婚姻, 伦理, 治疗, 质性研究

Abstract: Objective To understand the real life experience of HIV/AIDS infected homosexual males in marriage relationship and receiving anti-viral treatment,in order to provide guidance for better case management.Methods Semi-structured interviews were conducted among 10 married AIDS homosexual male patients,and the data were analyzed using Colaizzi phenomenological analysis.Results Finally 5 topics including “shame and self-discrimination”,“worrying about wife and children being infected and discriminated”,“the pressure and hope of marriage for treatment”,“not knowing how to inform disease status to spouse and children”,and “sense of uncertainty towards prognosis”.Conclusion The marriage between a gay and a female brings psychological pressure to AIDS infected gay patients,as well as impacts on their treatment.This group has ethical dilemmas,and their lifestyle affects the spread of diseases.Therefore,trapeted intervention provided by professional medical staff are required.

Key words: AIDS, Male homosexuality, Marriage, Ethics, Treatment, Qualitative study